Outcome Registry
APBMT collects each patient's transplant outcome data in three ways.
In 2009, the APBMT Registry Committee created the Least Minimum Dataset (LMD) to collect each patient's outcome data. The LMD consists of three papers: the day 100 report, disease information, and an approximately 100-item yearly follow-up. The data is sent by Excel forms, which adhere to the rules defined by the APBMT Data Center in the Dataset Structure.
To avoid duplicated works for outcome data submission, APBMT has signed a data transmission agreement with CIBMTR.
APBMT has developed an electronic data capture (EDC) system in collaboration with Osaka Metropolitan University and provides it freely to centers in the participating countries/regions. Data can be input by either country, registry, or center, and accumulated data is available for each country/registry/center.